11:00 23.02.2021

Interfax-Ukraine to host press conference 'Topical Issues of Orphan Diseases Treatment in Ukraine on example of SMA'

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On Tuesday, February 23, at 11.00, the press center of the Interfax-Ukraine news agency will host a press conference entitled "Topical Issues of Orphan Diseases Treatment in Ukraine on example of SMA." Organizer is the Children with Spinal Muscular Atrophy (SMA) Charitable Foundation of Kharkiv. Participants include the President of the Children with Spinal Muscular Atrophy Charitable Foundation Vitaliy Matiushenko; mother of a child diagnosed with SMA Olena Tsan; Roche Rare Disease Division Manager in Ukraine, Belarus, Moldova, Kazakhstan and Central Asia Svetlana Solovyova (8/5a Reitarska Street). The press conference will be available on the YouTube channel of Interfax-Ukraine. Admission of journalists requires registration on the spot.

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